Myth #1: Rare Diseases Affect Only a Small Number of People
- Fact: While individual rare diseases affect fewer than 200,000 people in the U.S., collectively, rare diseases impact over 300 million people worldwide—more than the populations of the U.S. and Canada combined.
Myth #2: Rare Diseases Are Always Inherited
- Fact: Many rare diseases are genetic, but others can arise from environmental factors, infections, or unknown causes. Conditions like certain rare cancers or infections illustrate the variety.
Myth #3: There’s No Hope for Rare Disease Patients
- Fact: Advances in genetic research, new therapies, and advocacy efforts are transforming lives. Organizations like RareGen actively contribute to these advancements, offering support and hope.
Myth #4: Rare Diseases Are Well-Understood
- Fact: Only a fraction of rare diseases have approved treatments. Increased awareness and research funding are critical to changing this.
Myth #5: Rare Diseases Don’t Affect Children
- Fact: Many rare diseases manifest in childhood, making pediatric care and early diagnosis essential.
By dispelling these myths, we can foster greater understanding, empathy, and action for the rare disease community.
