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Your Contribution Can Save Lives

Your generosity fuels RareGen’s mission to transform the lives of individuals affected by rare diseases. Every donation directly supports our programs, from providing life-saving medications to funding youth advocacy initiatives. Together, we can create a brighter future for those who need it most.

Impact of Your Donations

Donors like you are making a tangible difference in the rare disease community. Your support has enabled RareGen to:

Provide Life-Saving Medications

Over 500 patients in India with chronic liver diseases have received post-transplant medications, improving their quality of life and giving them a second chance.

Empower Youth Advocates

Funded leadership training for over 200 young advocates, equipping them with the tools to drive policy changes and raise awareness.

Raise Global Awareness

Supported RareGen’s participation in international conferences, bringing rare disease advocacy to platforms like the United Nations.

Visual Impact

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Youth Advocacy Mission: Empowering the Next Generation

Every dollar counts and helps RareGen make a meaningful impact. Choose the level of support that resonates with you:

$50: Provides one unit of life-saving medication for a patient in need.
$100: Supplies advocacy materials and training resources for youth leaders.
$500: Sponsors the creation of an awareness campaign reaching thousands of people.
$1,000: Sends a youth delegate to an international conference to advocate for rare disease awareness.
$5,000: Fully funds a local chapter’s activities for an entire year, supporting advocacy, education, and fundraising efforts.

Become a RareGen Champion—just $25 a month provides ongoing support to patients and advocates

Additional Features to Inspire Confidence

Anna’s Journey: Finding a Friend Who Understands

“Before joining RareGen, I felt like no one really understood what it was like to live with a rare disease. I was always the ‘different’ kid. But through the Peer Support Program, I met others who just got it. I connected with another teen living with the same condition, and for the first time, I felt truly seen and understood.”
— Anna, 16, RareGen Member from California

Anna’s story is a testament to the transformative power of connection. Her bond with her peer mentor not only gave her emotional support but also inspired her to start advocating for others in her community.

Ethan’s Quote: Turning Struggles into Strength

“I was hesitant to join at first, but now, the Peer Support Program feels like a second family. Talking to someone who knows what I’m going through helped me see my condition as a source of strength, not just a challenge.”
— Ethan, 18, RareGen Member from Florida

For Ethan, being part of RareGen’s network wasn’t just about sharing struggles—it was about finding strength and purpose. He now helps mentor younger participants, paying forward the support he received.

Leila’s Impact: Bridging Borders

“RareGen connected me with someone halfway across the world. We share tips on managing symptoms and cheer each other on through hard days. It’s amazing how this program has made me feel closer to someone I’ve never even met in person.”
— Leila, 15, RareGen Member from the UK

Leila’s experience highlights RareGen’s international reach, breaking down geographic barriers to create meaningful global connections.

Recognition Opportunities

Acknowledge major donors through an online donor wall or personalized thank-you letters.

Transparency Section

Break down how every dollar is used, such as:

70% directly funds programs (e.g., medications, advocacy training).
20% supports operational costs (e.g., logistics, staff).
10% fuels outreach and awareness efforts.

Why Your Support Matters

Rare diseases affect over 300 million people globally, yet resources are often limited or inaccessible. Your donation changes this reality. With your help, RareGen can expand its reach, save more lives, and empower more advocates to create lasting change.

Take the next step. Be the difference today.

Together, we can turn hope into action and build a world where no one faces a rare disease alone.