Get Involved: Be the Change in the Rare Disease Community
RareGen thrives on the passion, commitment, and energy of individuals like you. Whether you’re looking to start or join a chapter, volunteer your time, advocate for rare diseases, or support our mission financially, there’s a place for everyone in our growing movement. Together, we can create lasting change for individuals and families affected by rare diseases.
Ways to Participate
Start or Join a Chapter
RareGen chapters are at the heart of our mission, empowering youth to lead advocacy efforts, raise awareness, and fund vital initiatives within their local communities.
Start a Chapter
Bring RareGen to your area! We provide all the resources and guidance you need to establish a chapter, including training materials, advocacy toolkits, and ongoing mentorship.
Ready to lead? Click here to begin your journey and make a difference in your community.
Join an Existing Chapter
Be part of a dynamic team working on local and global rare disease projects. Collaborate with peers, contribute ideas, and gain valuable experience in advocacy and leadership.
Explore active chapters and connect with one today.
Volunteer Opportunities
Volunteering with RareGen offers a chance to make a tangible difference while building skills and connections.
What Volunteers Do
How to Get Involved
Your time can create a ripple effect of change. Join our team of dedicated volunteers!
Advocate for Rare Diseases
Advocacy is at the core of RareGen’s mission, and anyone can contribute to driving awareness and policy changes.
Become an Advocate
Become a rare disease advocate today and help amplify the voices of millions worldwide.