Raregen

International Support Mission: Delivering Hope Across Borders

Rare diseases often create disproportionate challenges for underserved communities, especially in rural and developing regions where access to healthcare and medication is severely limited. RareGen’s International Support Mission was established to address these disparities, ensuring that every patient, regardless of location or circumstance, has access to the life-saving resources they need.

Medication Distribution Initiatives

RareGen’s medication distribution initiatives focus on providing vital post-transplant medications and other essential medical supplies to underserved populations. This effort is driven by the understanding that access to these medications can mean the difference between life and death for many rare disease patients.

Current Focus: Liver Transplant Medications

  • RareGen’s flagship project aims to provide post-transplant medications such as tacrolimus and D-penicillamine to liver disease patients in India. These medications are critical for preventing organ rejection and ensuring long-term survival.

  • The project’s goal is to support 1,000 patients, with each unit of medication costing approximately $83.96. RareGen is actively fundraising to meet the total project cost of $84,000, ensuring that no patient is left behind.
  • Current Focus: Liver Transplant Medications

    Partnerships with Local Foundations: RareGen collaborates with organizations on the ground, such as the Children’s Liver Foundation, to identify patients in need and streamline distribution.

    Supply Chain Management: By partnering with reliable pharmaceutical suppliers, RareGen ensures the medications are high-quality and delivered efficiently.

    Direct Patient Support: Medications are distributed directly to patients and their families, along with education on usage and adherence.

    Impact Metrics

  • To date, RareGen has reached over 500 patients, providing them with life-saving medications and drastically improving their quality of life.

  • Testimonials from recipients highlight the tangible difference these medications have made, offering them a renewed sense of hope and stability.
  • Partnerships That Drive Impact

    RareGen’s success in its International Support Mission is fueled by strategic partnerships with respected organizations and institutions.

    Children’s Liver Foundation (India)

  • RareGen’s collaboration with the Children’s Liver Foundation ensures that liver disease patients in India receive the medications they desperately need.
  • This partnership bridges the gap between international donors and local patients, ensuring resources are allocated effectively and ethically.
  • By leveraging the Foundation’s local expertise, RareGen ensures that the distribution process is culturally sensitive and impactful.
  • Other Collaborations

    Global Genes and NORD: RareGen works with these organizations to raise awareness about medication disparities and garner support for its initiatives.

    Local Healthcare Providers: Partnerships with hospitals and clinics in rural areas help identify patients and provide follow-up care.

    These partnerships underscore RareGen’s commitment to collaboration and inclusivity, ensuring that its mission transcends borders and barriers.

    Why This Mission Matters

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    The Numbers Speak for Themselves

    Donate to Save Lives

    Every dollar counts. Every contribution saves a life.

    How You Can Help

    • $83.96: Provides one unit of life-saving medication for a patient in need.
    • $500: Supports a family’s entire post-transplant medication needs for six months.
    • $1,000: Helps fund medication distribution for multiple patients in rural areas.

    Make an Impact Today

    Your generosity provides life-saving medications and hope to those who need it most. Join us in transforming lives

    Looking Ahead

    RareGen’s International Support Mission is not just about providing medication; it’s about building a global movement of compassion and equity. By addressing immediate needs while advocating for systemic change, RareGen is creating a future where access to life-saving resources is a right, not a privilege.

    Your support fuels this mission and ensures that RareGen can continue expanding its reach to other underserved regions, tackling disparities one life at a time. Together, we can rewrite the story for rare disease patients worldwide.